PANDAS and PANS: No Easy Answers – Pittsburgh Post-Gazette
View the story hereYoung Brandon was always a happy, bright and content child, his parents say, so when he would get sick with a strep throat and fever three years in a row — always in February and always followed days later with distressingly unhappy behavior — his parents knew something was wrong.
Local Mother Advocates for PANDAS Families – BlackburnNews.com
View the story hereA Tilbury mother, whose two sons were diagnosed with PANDAS, has been connecting with local families in need of support. Jennifer Ducharme says her experience with the disorder began when her eldest son Nathan June woke up with a stutter one morning at the age of two and a half. Ducharme says, eventually, he couldn’t make noise at all.
Often misdiagnosed families fight for awareness – thv11.com
View the story hereThis year, the Arkansas General Assembly passed a resolution, proclaiming the 9th of October as National PANDAS/PANS Awareness Day.
It’s not the type of pandas you might be thinking of; it’s much more serious. PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorder and PANS stands for Pediatric Acute Onset Neuropsychiatric Disorder. Both are often misdiagnosed, yet treatable.
OK Lab Finds Hope for PANDAS Families – news9.com
View the story hereAn Oklahoma company is working to help children who have a disorder that affects millions worldwide. “We kept having reoccurring strep,” remember Amanda Mullins, “then recurrent ear infections. It was just like one infection after the next.” Then Mullins remembers her daughter, Riya, drastically changed. She was just a toddler. “She quit playing,” she said. “She quit laughing. She quit being a kid. She’d wake up in the middle of the night in an angry rage. She doesn’t even know why she’s angry, you know, and just throwing things.”
