International PANS Registry – pansregistry.org
See it hereThe Pediatric Research & Advocacy Initiative has announced establishment of an international database of PANS patients to assist researchers and hasten development of treatments.
Letter to Cincinnati Children’s Addressing Grand Rounds – Beth A. Maloney, Esq.
Read the full letter hereOn August 28, 2018, Donald Gilbert, MD gave a grand rounds presentation promoted as being about a disorder that he neither recognizes nor treats. Two MOC credits were offered to those who “successfully answered” questions following the presentation. Presumably that meant answering in accordance with Dr. Gilbert’s stance, which is the minority viewpoint and in opposition to the NIMH, hundreds of supportive research studies, clinics at prestigious universities, and the army of physicians who aggressively treat PANDAS nationwide.
Saving Sammy e-Book Promotion – Random House
In a special two week promotion, Random House is offering a $9.00 reduction on the purchase price of the electronic version of Saving Sammy. Until Saturday, July 2, 2016 the electronic version of the book will be available across all platforms for just $1.99. This special price also applies if you want to make a gift of the book. Whether you prefer Kindle, Nook or iPad – and from whatever online seller you choose – this is the time to pick up a copy.