Pittsburgh Doctor Making Strides Treating PANDAS – CBS
See it hereParents say it is like their child changed overnight, but now a local doctor is on a personal mission to be on the cutting edge of treatment and diagnosis.
Harrowing Story of PANDAS – Canadian TV News
See it hereOne afternoon in the winter of 2017, Corie Entrop’s 10-year-old son came home from school and began pulling out his hair. When the Alberta mother pleaded with him to tell her why he was doing it, he was unable to provide an explanation.
“I don’t know,” he responded. “I need to pull out my hair.”
Letter to Cincinnati Children’s Addressing Grand Rounds – Beth A. Maloney, Esq.
Read the full letter hereOn August 28, 2018, Donald Gilbert, MD gave a grand rounds presentation promoted as being about a disorder that he neither recognizes nor treats. Two MOC credits were offered to those who “successfully answered” questions following the presentation. Presumably that meant answering in accordance with Dr. Gilbert’s stance, which is the minority viewpoint and in opposition to the NIMH, hundreds of supportive research studies, clinics at prestigious universities, and the army of physicians who aggressively treat PANDAS nationwide.
Rebecca’s Journey Home from PANDAS – seacoast online.com
View the story hereJacky Sullivan could only watch through the window in a locked door as her teenaged daughter, Becky, was led away until she disappeared down a long corridor. It was a point that had been reached after much hardship and pain, but before anyone realized that Becky’s violent attacks against herself and against her mother were cries that needed medical attention, not psychiatric treatment.
Strep by Me – AAPPublications.org
View the story hereSimilar to hearing a song that triggers reflections on events long past in one’s life, reading this month’s review article on Group A Streptococcus(GAS) by Drs. Dietrich and Steele prompted memories of my own episodes with this determined bacterium.
All the Problems with PANS: An Open Letter – walkinginquicksand.com
View the story hereDear Doctor,
I’m sure you’re aware that back in 2012, PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) was formally proposed and described in a white paper by a small handful of physicians who had extensive expertise in PANDAS. While this was welcome news to those who recognized that the neuropsychiatric features seen in PANDAS were also seen in the absence of strep, the decision to focus on acute onset in children over the age of two was not based upon any biomarker or science that would lend credibility to the theory that the pathogenesis of the described syndrome was unique solely to children meeting the diagnostic criteria set forth in the paper.
PANDAS: Nightline – ABC News
View the story hereParents of PANDAS parents face skepticism even as their children recover.
20/20: What Is PANDAS – ABC Television
View the story hereAlexia Baier was an eager-to-learn, 4-year-old girl beginning pre-K in a suburb outside of Chicago. She thrived academically — counting, painting and playing with other children.
But five months after starting pre-K, she was infected with a bacteria that several millions of people get every year, according to the Centers for Disease Control and Prevention. The bacteria, group A strep, caused Alexia to get strep throat, a condition children usually recover from easily with treatment.
Girl Develops Psychosis from Strep Infection – The Daily Mail
View the story here‘She won’t let me touch her clothes, she says we are contaminated’: Mother of girl who developed psychosis from a strep infection describes agony of living with the mystery condition.”
Gut Microbiota Correlation in PANDAS – Bambino Gesù Children’s Hospital in Rome
View the story hereA new study, led by Dr. Lorenza Putignani from the Bambino Gesù Children’s Hospital in Rome (Italy), has found that gut microbiota may promote gut inflammation and activation of an immune response in PANS/PANDAS patients.
The researchers collected three fecal samples over consecutive days and, using 16S ribosomal ribonucleic acid (rRNA)-based metagenomics, they analyzed the gut microbiota composition of a cohort of 30 PANS/PANDAS patients aged 4-16 years (20 males and 10 females), comparing them with 70 healthy controls.
