It is hard to believe that 24 years after Sammy contracted PANDAS, 22 years since he recovered, and 17 years since Saving Sammy was published that it still takes a knock down drag out fight to obtain diagnosis and treatment for infection triggered mental illness in children. This article is behind a paywall, but well worth the $4.00 trial subscription to give it a read.
https://www.thecut.com/article/pans-pandas-neuropsychiatric-mental-illness-brain-swedo.html